I did an interview with Robin Lawson from the Caring Voice Coalition. They are a nonprofit organization that supports patients with chronic illnesses through a variety of means, including issuing a quarterly Community magazine. I was referred to them by some folks at Retrophin to do the interview to help raise awareness as part of a partnership to fund a free CTX testing program that will have some oversight or be fully administered by the folks at Caring Voice Coalition.
I’ve seen the draft and it looks great. I’ll link the article in a subsequent post once it gets published.