A few bits of news…
The first item I would like to report is that Monica from True Entertainment, the studio who produces the Mystery Diagnosis show has revealed that the episode that we did for CTX will be airing on Monday, August 13th. We’re anxious to see how it turns out and need to prepare ourselves for seeing ourselves on a show that we’ve been fans of for so long 🙂
Second, Angie and I just returned from our second ULF board meeting and feel that it went really good. This looks to be a good year for the organization and we are happy to report that the organization is on track to meet the fundraising goal that was set by the $160,000 challenge grant. This will give the ULF more opportunity to provide research grants to scientists who are researching Leukodystrophy’s and continue the support for the Leukodstrophies that the ULF is known for. Planning continues for the 25th annual ULF Scientific Symposium and Family Conference. There will be several special events at the conference this year and I am looking forward to it and can’t wait to see everyone again.
We leave on Saturday for the Make-A-Wish cruise aboard the Freedom Of The Seas ship from the Royal Carribean cruise line. We are departing from Miami and have stops in Cozumel, Mexico, Labadee, Hait, Ochos Rios, Jamaica, and Georgetown, Grand Cayman. We have several excursions booked including swimming with the Stingrays, swimming with the Dolphins, and Para Sailing. It should be a great time. That’s all for now, I’ll post an update after we get back from the cruise.